Resources

Resources

Basic seizure first aid and the Feelings that may follow

August 12, 2021

A seizure can impact everyone, not just those living with epilepsy. In this video, learn basic seizure first aid and what life may be like for families after that seizure. Adults and children alike will find some guidance and know that they're not alone.

Credit: Rebecca Collins, UNH Capstone Project

Rebecca created this video as a part of her Capstone project at UNH. Thank you for placing a spotlight on all those affected by epilepsy. Rebecca has a loved one living with epilepsy

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Photosensitive Epilepsy & COVID-19

January 25, 2021

Photosensitive epilepsy is a type of stimulus-induced reflex epilepsy that affects 3-5% of the 2.7 million Americans living with epilepsy. Various preventative strategies exist to avoid stimulus-induced seizures, especially in regards to COVID-19, and should be tailored to the specific needs of the individual at the recommendation of the treating physician. 

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Learn about SYMPAZAN by Aquestive

August 7, 2020

For years, clobazam was only available in pills or liquids. Thanks to PharmFilm technology, SYMPAZAN is the only product to offer clobazam in a convenient film.

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FDA Approves FINTEPLA® (fenfluramine) for the Treatment of Seizures Associated with Dravet Syndrome

July 1, 2020

FINTEPLA® significantly and substantially reduced convulsive seizure frequency in patients whose seizures were not adequately controlled on other medications, as observed in two phase 3 placebo-controlled clinical trials.

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Disability Rights Maine - Client Assistance Program

June 3, 2020

The Client Assistance Program (CAP) is a federally funded program that provides information, assistance, and advocacy to people with disabilities who are applying for or receiving services under the Rehabilitation Act.

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Epilepsy Resources

May 13, 2020

Resources provided by UCB

Patient Resources

Healthcare Resources

Seizure Diary

Epilepsy Advocate

Epilepsy Advocate YouTube channel

 

VALTOCO® (diazepam nasal spray) Tip Sheet

May 5, 2020

Information about VALTOCO® and how to access the nasal spray

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Diacomit Access

March 15, 2020

A message from Biocodex on access to their rescue medication, Diacomit.

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