Epilepsy Foundation New England is committed to protecting the rights of people with epilepsy and ensuring that they have access to needed services. We do this by helping individuals and also by advocating with community leaders and policymakers.
Bill Murphy, Director of Public Policy and Advocacy Phone: 617-506-6041 x 104 firstname.lastname@example.org
Individual Advocacy – If you believe your rights have been violated or you have a conflict regarding employment, school, healthcare, public benefits, or any other area, we can help. Our staff will intervene to resolve conflicts when possible and refer you to legal resources when necessary.
The Jeanne A. Carpenter Epilepsy Legal Defense Fund has been created to help people with epilepsy fight discrimination.
Public Policy Advocacy – The Foundation advocates for public policies that positively impact the lives of people with epilepsy. We work collaboratively with legislators, government agencies and the Governor’s office to implement laws and policies that promote programs to benefit people with epilepsy, provide access to all needed treatment and care, and effectively eliminate discrimination. We empower citizens to become more involved in the legislative process through advocacy activities at the state and federal level.
Advocacy Through Education: School Intervention Program
Education is vital to every child’s development, and nothing – including epilepsy – should get in the way of that. We can help parents and caregivers advocate with school officials to create an educational plan to best fit the needs of a child with epilepsy. The foundation offers educational support to families of school-age children, as well as children themselves, and school staff members (teachers, nurses) who provide services to a student with epilepsy.
Advocates are well-informed on disability law to help children receive the education they deserve, and can offer assistance with:
IEP (Individualized education plans)
504 plan meetings
Teacher and Nursing In-service Day