We could use Your help.

The Epilepsy Foundation of New England is currently researching the use/access of seizure rescue medicines in school settings to potentially sponsor legislation to delegate training unlicensed personnel to administer (specifically in the event that a school nurse is not available to administer the drugs to the patient). We are seeking families that would be willing to share experiences they have had related to this topic. Please contact Mallika Nagan at mnagan@epilepsynewengland.org.



The Massachusetts Special Commission to Study Switching Medications final report was released late last week. Advocates are asking the legislature to take action based on the study’s recommendation that the state limit the practice of non-medical switching, which occurs when health plans, in an effort to cut their costs, drive stable patients to switch from their current medication to a less expensive alternative, often without knowledge of the prescriber.



Epilepsy Foundation New England is committed to protecting the rights of people with epilepsy and ensuring that they have access to needed treatments and services. We do this by helping individuals and also by advocating on their behalf.

We need you to tell your story. By recording a video message or writing to your legislators (click here), we can increase awareness among our elected officials, community leaders, and policymakers. To make sure you stay up to date on our activities, and lend your voice, we invite you to join our Speak Up Speak Out network of advocates (click here).






Visit this page for the latest advocacy news from the national Epilepsy Foundation.




DID YOU KNOW… health insurance plans are often switching or not covering the medications of many patients with complex, chronic conditions (including epilepsy) for non-medical reasons. This is known as “non-medical switching” and it can lead to a serious, even fatal, situation if folks don’t get the medications they need. Has your medication been switched without your and/ or your doctor’s permission?  Have you had problems because of it?

EFNE played an important role in encouraging the state to look at this important issue and to create the Massachusetts’ Commission to Study Switching Medications. Now, it is crucial that the Commission members hear from patients. If you would like to participate and/or share your story please contact Bill Murphy at wmurphy@epilepsynewengland.org



SIGN THE PETITION TO REFORM STEP THERAPY:  Step Therapy, also known as Fail First, happens when a health insurance company forces a patient to try and fail on medications other than what their doctor prescribed, before they will cover the cost of the original prescription.   Delays in care can have serious medical consequences, adds extra visits to the doctor's office and ultimately can drive up overall health care costs.  Doctors know what to prescribe and know their patients best.   Their medical expertise should not be overturned by insurance companies looking to save money while jeopardizing the health of patients. Has this happened to you?  We currently have important bills before the Massachusetts Legislature to make sure people get the medications they need.  You can help us tell legislators how important this is by taking this survey and  by telling  your legislator you want to reform this discriminatory practice!




For information and/or questions about Advocacy and Public policy please contact:
Bill Murphy,
Director, Advocacy and Public Policy
Phone: 617 (506) 6041 x 104