2017 Teens Speak Up! Nomination


Teens Speak Up! (TSU) is part of the Public Policy Institute (PPI), the Epilepsy Foundation's signature advocacy initiative bringing together teens, parents, affiliate staff, and volunteers from across the nation to share their stories with Members of Congress. TSU supports the Epilepsy Foundation’s work to secure more funding for a cure, support community-based programs for people living with epilepsy, eradicate stigma and discrimination, and protect patient access to medications and treatment.

As part of TSU, teens living with epilepsy and their parents visit the nation's capital. They meet other teens from across the country who are also living with epilepsy. As a group, they receive advocacy training, tell their personal stories and meet with their legislators. TSU also marks the beginning of a Year of Service during which the teens will become epilepsy advocates back home and get their communities involved.

Instructions to the applicant or nominator:  Please provide information on the TSU nominee by answering the questions on the nomination form. Please provide as much background as possible.

Questions? Contact Bill Murphy at wmurphy@epilepsynewengland.org Please submit nominations as soon as possible and no later than Monday December 12,  2016 at noon.


Selection Criteria?

The TSU program focuses on teens! Nominees must be age 13 – 17 as of 3/29/2017 and at least in middle school. The selection committee will review several factors when reviewing TSU nominations to ensure a diverse representation, including advocacy experience at the state and federal level and involvement in an affiliate’s community outreach initiatives. The committee will seek to put together a TSU team made up of nominees that reflect the entire spectrum of epilepsy and types of seizures, and well as diversity in race, ethnicity, nationality, and geographic location. The committee is also looking for teens who have not had the opportunity to attend TSU previously.

The teen and parent selected must take their responsibility seriously and have demonstrated, through their involvement with the local affiliate and/or the national office, an interest and ability to be a strong voice for the epilepsy community. The selected teen and their parent will commit to the trip to Washington, DC for the TSU program and Hill visits, and also to remain engaged as epilepsy advocates and develop and implement an activity plan as part of the Year of Service. The teen and parent will also be expected to recruit other families to be advocates back home and to support the local affiliate and the national office in advocacy and awareness efforts.

Other Youth Programs


Year of Service

The Epilepsy Foundation of New England challenges youth ages 13-19 to join a team of teens in a Year of Service.  This group meets monthly and learns how to advocate for services for people with epilepsy as well as promote campaigns for a cure while also having fun!

Council of Young Adults

We encourage young adults ages 19-26 to apply for a position on the Council of Young Adults.  The Council will provide leadership in addressing the needs of people with epilepsy and challenges the face in the community.



Athletes vs Epilepsy

Athletes vs. Epilepsy Athlete Ambassadors are charged with assisting in supporting the mission and goals of the Epilepsy Foundation. Our Athlete Ambassadors not only represent the Athletes vs. Epilepsy program but also the Epilepsy Foundation of New England. We are passionate about raising awareness by sharing stories with others, and raising funds by participating in Athlete vs. Epilepsy and Epilepsy Foundation New England events.