MAINE!

Welcome to the Maine resource page.  This page directly links you to other websites and organizations that you might find helpful.

 

Family Support Navigators (click below)

State Agencies

  • Katie Beckett Program (MaineCare option for children with serious health conditions. It is one of the many ways your child can get MaineCare. If your child meets the rules for this option, your child can get MaineCare full benefits)
  • DHHS-Department of Health & Human Services
  • CDS-Child Developmental Services-The Child Development Services system is an Intermediate Educational Unit that provides both Early Intervention (birth through two years) and Free Appropriate Public Education (for ages three through five years) under the supervision of the Maine Department of Education. The CDS system ensures the provision of special education rules, federal and state regulations statewide, through a network of regional sites.
  • Maine Department of Education-The Maine Department of Education provides leadership and support to educators and families in preparing Maine students for success in college, careers and civic life. 
  • Bureau of Rehabilitation Services-BRS works to bring about full access to employment, independence and community integration for people with disabilities.
  • Americans With Disabilities Act (ADA)-The Americans with Disabilities Act gives civil rights protections to individuals with disabilities...It guarantees equal opportunity for individuals with disabilities in public accommodations, employment, transportation, State and local government services, and telecommunications."
  • Children's Behavorial Health (CBH)-CBH provides information and assistance with referrals for children and youth with developmental disabilities/delays, intellectual disability (mental retardation), Autism Spectrum Disorders, and mental health disorders
  • Client Assistance Program-The Client Assistance Program (CAP) is a federally funded program that provides information, assistance and advocacy to people with disabilities who are applying for or receiving services under the Rehabilitation Act. Programs under this Act include Vocational Rehabilitation, Independent Living Services and Projects with Industry. In Maine, the CAP is administered by C.A.R.E.S., Inc., an agency independent from State government. There are no fees for CAP services.

 

Epilepsy Centers

MMC Neuroscience Institute and Maine Medical Partners (MMP) - Neurology have collaborated to develop a Level 3 Epilepsy Center using the National Association of Epilepsy Center guidelines. This is the first of its kind in Maine.                        

Organizations

  • The Charlie Foundation-The Charlie Foundation was established in 1994 in order to raise awareness about the ketogenic diet as a treatment for childhood epilepsy. The modern success of the diet has led to new demands on the medical community. In order to meet these demands, the Charlie Foundation has expanded its priorities to include educational programs for dietitians and neurologists as well as support for clinicians and researchers working to perfect its administration and discover its mechanisms.
  • The Maine Career Center site has information for youth, adults, employees and providers. It is a diverse website and easily navigated    
  • Canine Assistants-Seizure Response Dogs-Canine Assistants also trains and provides seizure response dogs for certain recipients. As with some of our service dogs, these dogs are adopted from various organizations and selectively screened for personality, temperament, and general health. Following general training, seizure response dogs are trained to perform one of the following behaviors, depending on the recipient's need: remain next to the person during the course of  a seizure, summon help in a controlled environment, or retrieve a phone prior to the seizure   when indicated by the recipient. Certain dogs may even develop the ability to predict and  react in advance to an oncoming seizure once they are placed with their recipients.  
  • Woodfords Family Services has been providing community based services to individuals with special needs for 45 years.  The agency is proud to offer a wide array of family support and educational services in Southern, Central and Midcoast Maine. 
  • Brain Injury Voices is an active volunteer group of brain injury survivors in Maine who are "paying it forward" by educating medical professionals and the general public about brain injury from the survivor point of view, advocating for the importance of brain injury rehabilitation, supporting survivors and families through peer mentoring.        
  • Michael T. Goulet Traumatic Brain Injury and Epilepsy Foundation:  Our mission is to raise awareness for prevention and improve the lives of patients and families affected by Traumatic Brain Injury & Epilepsy Disorders. We provide funding for education and research towards prevention, treatment methods, and effectiveness, to organizations and local individuals for scholarship and assistance.
  • .Maine Parent Federation- in existance since 1984, is a private non-profit organization. MPF provides information, referral, one on one telephone support, and training to parents of children with disabilities or special health care needs and the professionals who work with these families through numerous grant-funded projects.                   

Additional Resources

Seizure Action Plan-Action plan for schools to follow in the presence of a seizure.

Seizure Observation Record-A recording sheet to log seizure activity.

School Nurse Training-Information for school nurse training.

Epilepsy Tool Kit-Organized forms that help keep your most important health records handy. A must for newly diagnosed individuals!

Helpful Videos

Seizures In School

Understanding Epilepsy